We met Dr. Tebbi for the first time today. He came in, fairly early this morning to discuss the results of the CT Scan and the MRI.
He explained to us that Jordan had many lesions on her spine and one tumor pressing on her back, which is surely what has caused her all the back and leg pain. This one tumor is dangerously close to breaking through and pressing on her spinal cord. This tumor is the primary source of their concern right now because they don’t want it to press on the spinal cord and cause her paralysis.
Jordan didn’t take the news from Dr. Tebbi very well. She cried a little bit and he tried to joke with her, to lighten her mood. He made a couple of comments about the hospital room being nicer than the Hilton, certainly more expensive than the Hilton and she had a bed here that moved up and down, reclined, etc. which she couldn’t get at any Hilton. She just stared at him like he had a lot of nerve joking at a time like this.
Dr. Tebbi told us he was requesting a consult with a Neurosurgeon because of where the one tumor was located. We met Dr. Gonzales-Pitrillo this same day, he is one of the Neurosurgeon’s here at SJH. (St Joseph’s Hospital) He explained that Jordan had tumors all along her spine and on her hip bones. This set Jordan off again, because she didn’t realize that the words lesions and tumors were the same. We asked Dr. G to explain the difference and he said that sometimes they use the word “lesions” because everyone gets very anxious when they say “tumors”, but they really mean the same thing.
Dr G came into Jordan’s room and asked a bunch of the same questions, when did everything start, what has happened so far, etc. He asked Jordan to do a few things, squeeze his hands, move her feet and legs, etc.
After he left, Jordan said she thought she needed to make flash cards, because everyone asks her the same questions. It should all be in her chart but they ask again anyway. This annoys her a bit.
Jordan had a full bone scan today to see if tumors exist on other areas in her body.
Jordan also had a biopsy done on her left hip bone today (front side of body). This biopsy was of an actual tumor to help determine what is going on. They used a CT scan while doing the biopsy to be able to see precisely where to draw it from.
She was able to go back to her room after these two tests and didn’t have any others today.
Danny and Donna arrived today. We spoke with Dr. Wynn while Jordan was having her biopsy done. As of now, they suspect this could be one of four types of bone cancer. Possibilities include Ewings Sarcoma, Neuroblastoma and Osteo Sarcoma. I can never remember the fourth one, as they are focusing on Ewings based on how the tumors are presenting themselves.
At some point today, Jordan ended up with a PCA. This is a device that constantly administers Morphine and she has a button that she can press to give her an additional boost of the drug if she needs it. She was receiving 4 mg of Morphine over a 4 hour period.
He explained to us that Jordan had many lesions on her spine and one tumor pressing on her back, which is surely what has caused her all the back and leg pain. This one tumor is dangerously close to breaking through and pressing on her spinal cord. This tumor is the primary source of their concern right now because they don’t want it to press on the spinal cord and cause her paralysis.
Jordan didn’t take the news from Dr. Tebbi very well. She cried a little bit and he tried to joke with her, to lighten her mood. He made a couple of comments about the hospital room being nicer than the Hilton, certainly more expensive than the Hilton and she had a bed here that moved up and down, reclined, etc. which she couldn’t get at any Hilton. She just stared at him like he had a lot of nerve joking at a time like this.
Dr. Tebbi told us he was requesting a consult with a Neurosurgeon because of where the one tumor was located. We met Dr. Gonzales-Pitrillo this same day, he is one of the Neurosurgeon’s here at SJH. (St Joseph’s Hospital) He explained that Jordan had tumors all along her spine and on her hip bones. This set Jordan off again, because she didn’t realize that the words lesions and tumors were the same. We asked Dr. G to explain the difference and he said that sometimes they use the word “lesions” because everyone gets very anxious when they say “tumors”, but they really mean the same thing.
Dr G came into Jordan’s room and asked a bunch of the same questions, when did everything start, what has happened so far, etc. He asked Jordan to do a few things, squeeze his hands, move her feet and legs, etc.
After he left, Jordan said she thought she needed to make flash cards, because everyone asks her the same questions. It should all be in her chart but they ask again anyway. This annoys her a bit.
Jordan had a full bone scan today to see if tumors exist on other areas in her body.
Jordan also had a biopsy done on her left hip bone today (front side of body). This biopsy was of an actual tumor to help determine what is going on. They used a CT scan while doing the biopsy to be able to see precisely where to draw it from.
She was able to go back to her room after these two tests and didn’t have any others today.
Danny and Donna arrived today. We spoke with Dr. Wynn while Jordan was having her biopsy done. As of now, they suspect this could be one of four types of bone cancer. Possibilities include Ewings Sarcoma, Neuroblastoma and Osteo Sarcoma. I can never remember the fourth one, as they are focusing on Ewings based on how the tumors are presenting themselves.
At some point today, Jordan ended up with a PCA. This is a device that constantly administers Morphine and she has a button that she can press to give her an additional boost of the drug if she needs it. She was receiving 4 mg of Morphine over a 4 hour period.
No comments:
Post a Comment