One year ago

Day +233

One year ago today Jordan was admitted to St. Joseph's Children's Hospital. She had an MRI the previous day and I received an alarming call from her Pediatrician, Dr. Nadal to rush her to Dr. Tebbi at St Joes. He was the director of Oncology. We first had to go to Dr. Nadals office to pick up the paperwork, but while there he realized Dr. Tebbi's office had already closed. We called the next morning and got an appointment for 1pm with Dr. Wynn.

That day we were filled with fear of the unknown. Dr. Wynn was gracious and calmed our fears by stating that they didn't know anything at this point, by they wanted to run tests and admit Jordan to the hospital.

She was admitted a few hours later and spent the first few days on the surgical floor because the Pedi Hem/Oc floor, sadly, was completely filled with patients. How many kids have to go through this........

This first night in the hospital Jordan had a CT Scan and a MRI. These tests didn't start until about 11pm at night, which was quite a shock to me. I never considered they would run these tests so late, but a hospital never sleeps.

This was the same night the MRI tech said to me 'how long has your daughter had cancer?'. At this point she had not been diagnosed and I quickly relayed this to the tech who apologized and just kept working. I wonder now if she'll ever make that mistake again.

This week will be filled with anniversaries of many firsts in this battle that Jordan has so bravely fought. It will be a time for reflection on where we started, where we went and where we are now.

She is my hero.

I received a call from Dr. Petrovic today with wonderful news. I didn't realize the irony until now, while I write this entry. One year ago, we were so scared and today we are so grateful.

Dr. Petrovic called to tell me that Jordan's BCR able blood test showed no signs of the Philadephia chromosome, it is undetectbale. Thank you God! I have been praying for this a lot lately because about two weeks ago, Dr. P called to tell me that they found one philly cell in a batch of 10,00. The Philly chromosome is the precursor to the Leukemia - no need to say more.

Dr. Petrovic felt it was a fluke because at the time Jordan was fighting shingles and her body was focused on the shingles instead of warding off the chromosome and leukemia.

She ran the test again last Friday and gave me the results today. We are so thankful. They will continue to run the test monthly which has been their standard practice since the transplant.

Please keep praying for Jordans continued recovery and all those that fight along with her. There are so many children fighting this ugly beast. I had no idea how bad it was until I sit and think about all the children we have come to know this year that have lost their battle, just in the last twelve months.

Ovi
Jacob
Natalie
Danny
Brent
Kaitlin
Catie
Chassity
Christi
Jenna W
Joseph
Kate
Donovan
JJ
Makenzie
Jake
Jenna M

I'm now at a loss for words.