Jordan is home!!!
She was released tonight, so she only spent 4 days in the hospital, twice as much as they projected. It always turns out that way, doesn't it. 24-48 hours ends up being 4 days. Oh, well.
We are incredibly thankful to her doctors and nurses for all the care she received while in the hospital. We even got to see a couple of nurses from the BMTU, that was a great surprise, since she wasn't on the 2nd floor which is where HEM/OC is located.
She still has to continue 7 more days of antiobiotics and she has to drink 2.5 liters of water every day to flush them out of her system, so they don't damage her kidneys.
They lowered her Cellcept and FK506. The Cellcept is used to suppress her immune system so her donor bone marrow doesn't attack her body. They lowered it a couple of weeks ago with great success, so now they are lowering it again.
She ended up getting IVIG while she was admitted even though her IG level wasn't below 500. It's been several weeks since she has had an IVIG infusion. Lowering the Cellcept has been a big contributor to her not needing IVIG every three weeks. We are looking forward to making that timeframe even longer since they are lowering it again.
Her spirits are up. She was thrilled to be coming home and Kennedy was beyond excited to see her. It was adorable. She really missed Jordan. They spend 24 hours a day together and she was literally heartbroken the first and second night Jordan was admitted. I found her sitting by Jordan's bedroom door, looking terribly sad, ears back, and she was kind of slouched over with her shoulders hunched forward. It was pitiful. She's much better now and so is Jordan.
Thanks to you all for the extra prayers for Jordan's speedy recovery. The power of prayer is amazing.
Please keep some other friends in your prayers as they are fighting very hard.
www.caringbridge.org/fl/taylor
www.caringbridge.org/visit/katehrischuk
www.caringbridge.org/ny/penelope
We lost a caringbridge friend this week too. Please pray for his family as they struggle through this loss.
www.caringbridge.org/ms/brentnason
Much love to you all.
Katherine
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