Day + 152 again

Day +152

Hi Everyone,

Jordan continues to do great. We went to clinic today and saw Dr. Neider. Her counts all look good. RBC = 12.2, WBC = 5.74, Platelets = 348, FK506 = 11.9 Jordan had to get IVIG again today. The good news is that they are working with our insurance company to see if the next dose can be given at home. Dr. Neider said she can reduce the Prednisone again on 11/23 to 10 mg daily. She also gets to stop the Lantus (insulin) injections because her sugar levels are no longer too high. Her sugar levels have dropped dramatically over the last couple of weeks, since the Prednisone dose keeps decreasing. She is more than happy to stop the injections. She will only need to do the Humalog (fast acting insulin injection) if her sugar level is high. Dr. Neider says she has some Scleroderma, because of the GVHD of the skin. This is best described as tightness in the skin (arms and legs) and if you squeeze the skin, it dimples. (looks like cellulite) He recommended deep tissue massage and said that some doctors have seen improvement when massage has been used. We saw Mari Fernandez today in the hospital. Her son Danny got his transplant the same day as Jordan, they were neighbors in the BMTU for 4 weeks. He isn't doing so well and could use some prayers sent his way. He is suffering from some severe GVHD and has been admitted back into the hospital. Please keep him in your thoughts. On a lighter note, Kennedy is adding a ton of joy to our home. She is the sweetest puppy ever! She is also a very good girl. She had to spend the entire day in the bathroom today since we were at clinic for 8 hours. She didn't even have one accident and went potty as soon as Jordan took her outside. Thank you Karen for starting the potty training process. We can't thank you enough for that. :-) We close on our new home tomorrow and are really looking forward to moving in. Thanksgiving will be so much fun this year with some of our family here to share it with us. Thanks for checking in on us and a continued thanks for all the prayers and well wishes for Jordan's recovery.

Katherine and family