Puppy bound

Wow, it's been a month since I've been here to update her journal. Jordan continues to do very well. We saw Dr. P today and she gave us the good news that we can now change our clinic visits to every other week. Can I say, it's about time? Thank goodness. The drive to St. Pete every week is long and it takes so much time out of our day. Every couple of weeks it causes Jordan to miss Spanish class because she has to get an infusion of IVIG. They have decreased her prednisone level down continually over the last several weeks. She is now only taking 20 mg in the morning. She is not as shaky or emotional anymore. We do have to watch carefully for signs of Graft vs Host disease as they get her off the prednisone, since it helps to ward off GVHD. She has had a problem the last few weeks related to swelling. Her ankles tend to disappear. They put her on Lasik to help get rid of the water she is retaining. This is yet another symptom of the Prednisone. We will be so glad when she is off of it completely. The skin on her arms and legs are so tight to the touch. Her skin has been stretching because of retaining water and since it's so thin from the Prednisone, she has many stretch marks on her tummy, arms and back. They look painful, but she says they are not, however they do itch a bit.

We are getting ready for Halloween. Madison and Noah are going to be Pirates together. Jordan may walk around the neighborhood with us, but I worry about her ankles swelling, so we'll have to wait and see.

Her puppy will arrive in a week or so. She is getting an Alaskan Klee Kai. The breeder is located in Illinois. The web address is: www.aliakkennels.com This dog is rare in the US and the best way to describe it is as a miniature husky. They are absolutely adorable. Her doctors say she has the all clear and they think the puppy will do her a lot of good, aiding in her recovery. She'll have to walk it every day, so this will help redevelop her leg muscles, which tend to be weak because of the lack of exercise over the last 9 months.

She has named the puppy Kennedy. She is so excited about this she can hardly stand it. We did our shopping last weekend for all the puppy stuff. When we get Kennedy, I'll be sure to add some pics of her and Jordan here on the site.