We have prayed a lot for this day and continue to have faith that this will cure Jordan's illness.
Jordan’s Levels Normal Range
Weight 54.5
WBC 0.74 3.84 to 9.84
Hemoglobin 9.2 10.8 to 13.3
Platelet Count 51 175 to 345
Jordan’s counts have really dropped quite a bit now. She doesn’t need any blood products today for platelets or red blood cells.
Dr. Neider came in this morning and told us her transplant will be sometime around 1 or 1:30 today. They got a good yield and will be infusing her with 575 million stem cells.
They are also going to freeze 94 million stem cells in case she needs them later.
She is feeling better with the nausea, but is really down in the dumps emotionally. She was crying a bit this morning because she really doesn’t want to spend another 5 to 6 weeks in the hospital. We have to keep her busy, create a schedule and stick to it, even if she doesn’t want to.
The doctors and nurses have all told us how important it is for her to be as normal as possible, even though she cannot leave her room. She brought lots of stuff to do and now we need to push her to do it.
She has a stationary bike and yoga mat in her room. She did ride on the bike on Thursday and Friday, but hasn’t since then. Now that her nausea is under control, it’s time to get out of bed and get motivated. It’s easier said then done, but I think she will feel much better if she’s doing something and keeping busy.
We met another family last night that is a couple of doors down from Jordan. Their son Daniel Fernandez is getting his transplant today too. He is 19 and has ALL with the Philadelphia Chromosome. His donor is also un-related, it’s a 19 year old girl that came from the International Registry. I think Jordan’s donor must be in the U.S, because Mati never mentioned him being International. The only thing we know about her donor is that he is a 44 year old man with O Positive blood type.
The Marinol is really helping with her nausea. She also feels hungry which is a great sign. Making sure she eats well is also key to recovering from transplant. She doesn’t want to have an NG Tube inserted through her nose to her stomach and the only way to prevent that is to keep her nutrition up by eating regularly.
For some reason today, Jordan just is not excited about the transplant. She didn’t want her picture taken and just seemed like she didn’t want to participate in the excitement at all. I think she has a lot more anxiety than she will admit. She doesn’t really want to talk about it much and gives very short precise answers to all of us without any eye contact.
The infusion of the new marrow started at 2:15pm today. At 2:30 they slowed it down, because Jordan wasn’t feeling right. She started feeling warm and her throat felt like it had something stuck in it.
I talked more with Danny’s parents (Fernandez) today. We have so much in common with him and his family. He also presented with back pain prior to his diagnosis.
Donna stayed the night with Jordan tonight and will for the next couple of nights.
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