DAY 100!!!
I cannot believe it's day 100 already. Jordan has reached this milestone with very little difficulty. We have continued to go to clinic at ACH every Monday morning for the past couple of months.
She has had so many medication changes, it would be impossible to list them all and it's really not relevant, so I won't bore you with the details.
The biggest obstacle for her has been the continued dose of Prednisone. Prednisone is a steriod and it has less than desireable affects on the body. It causes puffiness, shaking and high strung emotions. Jordan is very sensitive, even more than normal because of the prednisone.
It has also caused her sugar levels to skyrocket. Because they have stayed in the 300-400 range, she was put on insulin. She has been giving herself insulin injections and taking insulin by mouth every day. She has to test her blood three times a day and if it's higher than 150 she has to give additional injections of fast acting insulin.
Needless to say, she does not enjoy this one bit, but has taken it in stride, just like everything else.
Her doctors are amazed at her and tell us all the time how wonderful she is. She is an A+ patient, she is very involved in her care and doesn't miss taking any of her meds. Since she has been so careful about taking her meds, her recovery has stayed on track.
Not once during the 100 days did they even mention that she would have to be hospitalized. Apparently this is a frequent occurrance for teenagers because they don't take their meds as prescribed. The last thing she wants to do is end up in the hospital again, so she is very careful about taking good care of herself.
In addition to all of her medical routines, she is back in school. She is taking 3 classes on line at Florida Virtual School and 1 class from Hospital Homebound. She is doing very well, especially considering two of her classes are Advanced PlacEment English and History. She is also taking Chemistry and Spanish. She will not be able to attend school again until her Senior year starts next August.
At least she gets to be at home and isn't stuck in the hospital.
I am so lucky to have her as a daughter. I am very proud of her and how she is handling this fight. She is stronger than she ever knew and will be able to overcome anything that stands in her way.
CONGRATULATIONS JORDAN ON 100 DAYS!!!!
Friday, September 22, 2006
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