Dr. Petrovic called today to tell us that the bone marrow biopsy was clear of all leukemia cells and that it was at greater than 99% donor cells. This was amazing news. It means that Jordan's donor cells are not allowing her own bone marrow to grow.
We have continued to see Dr. Petrovic or Dr. Neider every Monday morning in clinic. Every week they make small adjustments to her med dosages as well as add or remove meds, depending on how she's doing. So far, so good.
Friday, July 14, 2006
Wednesday, July 12, 2006
Day + 28
Day 28
We went back to ACH today to have the Broviac removed and to have a bone marrow biopsy done. They will check the bone marrow to determine what percentage of it belongs to Jordan versus the donor. They will also be on the look out for leukemia cells.
Jordan did well in surgery today and the bone marrow draw was quick, which is always a good sign that it's not infected with disease.
She came out of surgery and was not weepy this time. I think it was different this time because she has had surgery at ACH before and knew what to expect in the recovery room, etc.
We say Danny Fernandez and his mom Mari today. Danny is also on day 28 post transplant and was going through the same surgery as Jordan. He seems to be doing well although they have not been discharged yet.
We went back to ACH today to have the Broviac removed and to have a bone marrow biopsy done. They will check the bone marrow to determine what percentage of it belongs to Jordan versus the donor. They will also be on the look out for leukemia cells.
Jordan did well in surgery today and the bone marrow draw was quick, which is always a good sign that it's not infected with disease.
She came out of surgery and was not weepy this time. I think it was different this time because she has had surgery at ACH before and knew what to expect in the recovery room, etc.
We say Danny Fernandez and his mom Mari today. Danny is also on day 28 post transplant and was going through the same surgery as Jordan. He seems to be doing well although they have not been discharged yet.
Wednesday, July 5, 2006
Day + 21 - Going Home!!!
Day 21
We are going home today. It is so hard to believe that this stay in the hospital was 2 weeks shorter than Jordan's very first stay in February when she was diagnosed. How can it be that the BMT was so much easier to handle than that first set of chemo. I think its mostly because we knew the expectations up front. He doctor's were amazing by providing us with all the information and possibilities that could happen during transplant. In February we were entering a world that we never wanted to be a part of. There were so many questions, and it seemed like so few answers. We cannot thank the BMT team enough for all of their dedication to Jordan's care. We will miss seeing you every day, but look forward to going home to recover.
The pictures are of Jordan with Bethany Harmon (NP) and Mati her BMT coordinator. The second picture is of Jordan and Dr. Nieder.
Jordan has 9 different meds to take each day.
Tacrolimus (FK506) 1 5mg capsule twice a day.
Fluconazole 2 200 mg tablets once a day
Actigall 1 300 capsule twice a day
Neutraphos 1 packet twice a day
Prevacid 1 30 mg capsule once a day
Acyclovir 1 200 mg capsule three times a day
Prednisone 9 10mg tablets 5 in am 4 in pm
Norvasc 3 2.5mg tablets twice a day
Magnesium Oxide 2 400 mg tablets twice a day
Kytril 1 1mg tablet if needed for nausea
Saturday, July 1, 2006
Day + 17
Day 17
Jordan’s Levels Normal Range
Weight 48.8
WBC 2.33 3.84 to 9.84
Hemoglobin 9.6 10.8 to 13.3
Platelet Count 35 175 to 345
Jordan is doing remarkable. Her bone marrow is totally engrafted and continues to produce new cells. It’s very exciting. We were expecting for her to have to stay in the hospital for 6 to 8 weeks and as of now they are talking about her going home next week, which would only be a 4 week stay.
This past week, she started feeling so much better. She isn’t nauseous any more and is able to eat small meals and has much more energy. She’s been getting up out of bed and sitting in the chair next to the window painting. She’s been able to shower without getting weak and needing help getting dressed. There has been a lot of improvement in the last week and it’s been great for her physically and emotionally.
Since Day 4 we've only been journaling her counts. He progress has been consistent and she hasn't had any setbacks. We are so blessed that this seems to be working. We know we have such a long way to go, but each day is a miracle that we are truly grateful for.
Jordan’s Levels Normal Range
Weight 48.8
WBC 2.33 3.84 to 9.84
Hemoglobin 9.6 10.8 to 13.3
Platelet Count 35 175 to 345
Jordan is doing remarkable. Her bone marrow is totally engrafted and continues to produce new cells. It’s very exciting. We were expecting for her to have to stay in the hospital for 6 to 8 weeks and as of now they are talking about her going home next week, which would only be a 4 week stay.
This past week, she started feeling so much better. She isn’t nauseous any more and is able to eat small meals and has much more energy. She’s been getting up out of bed and sitting in the chair next to the window painting. She’s been able to shower without getting weak and needing help getting dressed. There has been a lot of improvement in the last week and it’s been great for her physically and emotionally.
Since Day 4 we've only been journaling her counts. He progress has been consistent and she hasn't had any setbacks. We are so blessed that this seems to be working. We know we have such a long way to go, but each day is a miracle that we are truly grateful for.
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